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Stephanie Butler deposited The Diving Bell and the Butterfly: Locked-In Syndrome and the (Un)Ethics of Narrative as Personhood in the group 2017 MLA Convention on MLA Commons 8 years ago
This is a slightly revised version of the paper I gave for the Out of Narrative Bounds panel organized by the forums TC Medical Humanities and Health Studies and TC Age Studies. This panel was chosen as representative of the presidential theme, Boundary Conditions. In this paper I use Jean-Dominque Bauby’s memoir, The Diving-Bell and the Butterfly, to examine ethical issues pertaining to auto/biography studies’ and medical humanities studies’ centralization of the capacity to produce embodied narrative to understandings of identity and personhood.